Mount Everest....

You ever feel like your climbing to get to the top and it seems Mount Everest high? You just can't see the top.....well that's how the first two weeks in January were like.  Sorry I haven't updated Gorda's blog lately but the roller coaster became too much.....some may already know but for those of you that don't....my baby had to have her first surgery on Tuesday 1.3.12 if your following the blog than you know what ROP is (see blog from 12.11.11 for more info. on ROP) well basically after weeks of the eye doctor doing weekly eye exams on Monday 1.2.12 they informed us the baby had progressed to level 3 ROP & that she would need surgery.  I was not happy at all to find out the news, not only because my baby going under is very scary, but because I was so positive it wouldn't progress and we could've gone home by Friday 1.6.12. What a way to start the new year huh....nehow I can't even explain how scary it is to go through surgery with your child, especially for Sophia that had to go back to level 3 Nicu & get reintubated for surgery.  She got reintubated in the afternoon & surgery wasn't until 6pm so you can imagine how frustrated she was with the tube & crying all afternoon up until surgery.  It was killing me to see her like that because you know she's crying she's back in an isolette & you can't carry her because she's intubated & you can see the tears rolling down her eyes.  Somehow I managed to get through the evening & stayed to sleep in her room that night at 6am the following day they decided to extubate her & exactly one hour later I asked if I could hold her since she was crying so much & a few minutes into me getting comfortable with her she starting going down had a huge episode & 911 reintubation.  What happens there when a child has an episode is instant.   I commend the staff for the way they come together as a team & the doctors and just everyone in general from respitatory to the front desk they are all just wonderful.  Well after Gorda's last episode in the NICU I spent the day & next night with her until she was extubated again on the second night around midnight & she did good for about 2 hours after I just had to go home and get some sleep.  So the recovery was a process & finally after a couple of days Gorda went back to Nicu level 2, back to feeding, back to an open crib & wearing clothes again, etc. than the wait to see when they would decide to start talking about discharge plans again.......oh how I've waited for the day tooooo long!! Send me home already, I'm tired of seeing my Gorda suffer!!! If there was a camera recording life in the NICU it would be a heart breaking reality show!!!!!!