In the Nicu World!!

Hello Sophia fans!! So sorry Sophias mommy hasn't posted much of an update lately but I must admit I'm a bit drained.  I can't express how this life in the "NICU World" is quite draining...I can only try to show you a bit of it.  It's not a day to day living experience it's more like hour by hour.  One hour your baby can be perfectly stable & the next your baby is no longer "stable", has been set back & is suffering all over again.  Tuesday night we left our Gorda perfectly good in fact she had been doing well in general since they transferred her to NICU 2 on Thanksgiving day.  When I say "generally good" this doesn't mean she's not desatting or that she's not on any kind of treatments because there's always something new.  In fact in the last 7days they have started doses of Calcium, Sodium, a multi-vitamin, Physical Therapy started on Monday 11.28.11 (They will see her 2-3 times a week to ensure she is doing what she should be at her age).  So Wednesday 11.30.11 (as I do first thing everyday when I wake up) I called to see how my baby's night was.  I spoke to Michelle who told me she was doing GREAT, had a great night, informed me she was weighing 3 Pounds already & had grown a quarter of an inch since her last measurement, & informed me she was tolerating her feeds (which they were at FULL feeds over 1 hour period which is basically the last step before they attempt to start teaching her bottle feeding).  Then as it is in the NICU world the roller coaster decides to drop down!!! Less than 2 hours later after speaking to Michelle she calls me to tell me Sophia was "Behaving bad" (This is what the nurses like to say in an attempt I think to approach it differently so it doesn't hurt so much when they are telling you she is doing bad) so apparently she started desatting into the low 30"s & had some bradys & became lifeless pale again & there she went to gain herself a bunch of test & cultures they started thinking she could possibly have an infection & as usual in this case they stop the feeds & have to wait for results.  So Thursday went by and so far the cultures were negative so no infection so far, gorda was looking much better had her pink color back and they re-started feeds the thing that sucks is they have to start back at square one.  Feeds start at 5ml's when she was already at full feeds.  Wednesday was horrible for me mainly because just Tuesday night I was crying at the thought of my gorda not being home by Christmas & New Year's Eve.  Me having to go through another holiday like Thanksgiving is unbearable.  I guess realizing that with this set back Wednesday my baby now definitely probably won't be home for Christmas killed me inside.  I know it's best for her to stay in the hospital as long as she needs to, but I was so happy since she was doing so well and than this stupid roller coaster took us back to square 1 again.....Why....please no more set backs.....Now more than ever I realize why I've hated roller coasters my whole life, they make me SICK!!!

I LOVE SOPHIA!!! COME HOME SOON BABY!!!!