I'm really really tired..was all you would notice if you saw me yesterday......it was a rough Sunday & Monday.....at 6am on Sunday 11.6.11 they called us that little miss Sophia had a turn for a little worse, she went from the ventilator to what they call an "Oscillator Ventilator" it's basically the scary grandfather of ventilators I'd say. It's really not good to hear your baby has reverted to a stage she has never been at since she was born but unfortunately that is this of the NICU world, it's a rough rough roller coaster!!! A little more info. on what this machine is if interested Click Here (Info. on Oscillator Ventillator)
Basically she was just too tired for even the regular ventilator and her lungs were more collapsed than before so they needed this machine which apparently keeps the lungs open. So of course once we got the call, immediately I get dressed to run to my baby girls' bedside. As soon as I get there and touch her it's like she knew I was there she grabbed both my fingers one on each hand...her touch fills my world!! So the day was long I spent the day & most of night there, Brian one of Sophia's R/N's was kind enough to find me a recliner so I could be more comfortable, much appreciated. I have to say I much rather be by her bedside so I can get up to comfort her every time she desats than anywhere else in the world. She needs presence, time, comfort, & love!!! Love is the biggest healer I say!!! So as Sunday went by she was not getting any better, desats all day basically and that is not good. Overnight things were basically the same. Come Monday the doctor was running a bunch of test, ordered an ultra sound of her heart to rule out PPHN & all day I was just a nervous wreck. Thankfully PDA was ruled out early in the day & PPHN found was mild too mild to even treat....so Dr. Fajardo decided the allow Sophia to rest & wait it out thinking that she could have another type of infection most likely fungal so they started her on the anti-fungal medication first thing Monday morning. So as the day went on more so Monday afternoon Sophia was desating less & finally allowing them to lower the levels of assistance given to her so she went from 100 to the 80's by the end of night. Mommy being exhausted went home at about 9pm to attempt to get some sleep, and daddy stayed in hospital once he arrived after work until about midnight leaving Sophia in a stable condition and stats in great numbers. So today Tuesday gorda according to the doctors is doing much better, she is on level 66 right now so from 100 yesterday she has gone down to 66, the goal to get her off this machine is apparently to be at 21 & for a few days I believe. So we will see how she does and how long it takes to get her off this noisy machine....it's amazing because when she was put from Cpap to Ventilator I was so heart broken & now I'd do anything to have her back on the regular ventilator so it's closer to getting back to Cpap & closer to getting back to room air & no machine assistance!!! Anyhow my gorda will get there she's just taking a vacation from the hard work for now & she's entitled!!! I really really need her to get back from vacation though so we can carry her!!! We can only carry her when she is stable & on the regular ventilator or preferably Cpap it depends on nurse & doctor on shift.....I just want to carry my baby already I have yet to have "Kangaroo Care" with her & she will be a month old on Sunday! P.S. Kangaroo care is their term for caring the baby.
P.S.S. Sophia rescued me!!! She's the miracle god gave to me!! When she wraps her hand around my finger oh it puts a smile on my heart!! I realize what life's all about!!
Click Here-(A song for my baby.....for our life together!)
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